Yes all this goes for me too. We seem to have similar lists of medications, I have crippling endometriosis. I also feel put aside and let down. My partner's sick long-term too. We've just made life at home as fulfilling and comfortable as possible, because over the years even the people wjo tried at first to include us never understood just how complicated an undertaking that would have to be.
I'm sorry you are in such a bad place and having such a hard time with it all, but you're definitely not alone!